Dear Judith Newman, I’m Writing this For You because You Didn’t Write For Me

 

boycott to siri

Image Description: Text “BoycottToSiri” in white on a black background

 

Dear Judith Newman,

I have not read your book To Siri With Love and I frankly don’t intend to. I know this will frustrate some people, maybe even you but I don’t actually think it is relevant to the thing that I want to criticize. I have seen my fellow actually autistic people in pain from your book. I have read their critiques and there are things about your book that quite frankly are unlikely to be saved by added context. The transphobia that exists in the introduction to your book, that you wrote that you wanted the power to sterilize your son, the sexist and disrespectful way you referred to Amythest Schaber.

Yes, yes I know, you’ve since said that you no longer plan or intend to sterilize your son. The thing is it’s too late. You published that awful bigotted sentiment in a best selling book, you can’t take it back now. The damage of that awful statement is already done. Even if you remove it from subsequent editions, it’s still out there and that message will be stronger and longer lasting than any weak backpedalling you do now.

You claim that you apologized to Amythest but as far as I’ve seen you’ve at best made a fauxpology and at worst you’ve simply made excuses. You also still clearly don’t understand why what you did was wrong, so I will again try to explain it to you. There are two major issues.

You described Amythest as a manic pixie dream girl. This term describes a narrative device where a female character (usually quirky) exists entirely for the benefit and consumption of a straight male protagonist and the presumed straight male audience.

You did somewhat address this critique but I have yet to see an actual apology. You have so far only been sorry that your intent was not effectively conveyed. You say that you thought the term was just a more modern version of gamine (a word so obscure I admit I had to look it up). You were just trying to be down with the kids. This response shows that you didn’t understand the other part of why calling Amythest a manic pixie dream girl was inappropriate.

You shouldn’t have been describing Amythest at all. What does what Amythest looks like have to do with the YouTube videos you were citing? Nothing. Reducing Amythest to a physical descriptor regardless of the underlying meaning of the intended compliment was itself inappropriate. People did not need to know that you think Amythest is gamine (a girl with mischievous or boyish charm) to know those videos are full of great information.

The thing I really want to talk to you about though is your response to the backlash from actually autistic people. You brushed off those criticisms by saying that you did not write your book for us.

This is a big problem especially for someone who claims to be autism friendly. With this statement, you prove that autistic people are just props for you. You did not care about the impact of this book on us. You also hide behind stereotypes to deflect from criticisms.

Apparently, we can’t understand your book because you put jokes in it. I can’t speak for all of us but I assure you there are many autistic people who understand jokes. We also know when they are not funny or at our expense.

There is something so utterly isolating about being told that a book where autism is central to the narrative was never intended for autistic people. Are we not part of the population? Do we not read? Shouldn’t you have considered that we might read it? That we are hungry for good representation?

If you are as autism friendly as you claim, shouldn’t you care more about what we have to say? Did you consider getting a sensitivity reader before you published?

You did not write for us and because of that regardless of the content of your book, you promoted our continued marginalization.

You wrote about us without our input to be consumed by people who already think of us as other. By erasing us from your inteded audience you turned us into zoo exhibits.

You did not write for us and the only real reason for forgetting that any part of the population might be part of your audience is because you forgot or don’t acknowledge that we are.

I write this for you because you did not write for me and I want you never to forget that autistic people read your book anyway. autistic people had opinions on your book anyway and you did not listen. Worse than that you have tried to actively silence us.

You did not write for us. Well too fucking bad, we remember that we human even if you and Harper Collins forgot. We’ll read whatever we want and protest when it hurts us. Rave reviews from Jon Stewart be damned.

I write this to you to remind you that regardless of your intent you have caused harm and your response to that has been erasure.

I write this also for anyone who thinks they can write about a marginalized group to which they do not belong and deflect backlash with “well I didn’t write it for you” as though that erases the harm instead of increasing it tenfold.

Sticks and stones may break my bones but silencincing autistic voices hurts far more than me.

Sincerely,

Kim Sauder (Actually Autistic)

 

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#ActuallyAtypical: a Media Roundup of #ActuallyAutistic Thoughts on the Netflix Series Atypical

Reviews

Alternate Atypical: Reimagining Netflix’s Atypical if it were Written by Actually Autistic People

“For some reason, Netflix has classed all of this as a dramedy. The thing is it actually has the basic structure of what could have been a pretty good gritty drama. The show presents Sam and his actions as inherent and unavoidable because he is autistic.And sure there are autistic men who display the same degree of entitlement and sexism. The thing is that this is learned behaviour. So I have tried to reimagine Atypical as if it actually dealt accurately and honestly with what is going on.”

Netflix’s “Atypical” Was a Major Disappointment for Autism Representation

“Netflix did not confirm whether there were concerted efforts to include autistic writers, creatives, or actors in any large roles. Onscreen representation isn’t the same as behind-the-scenes representation, especially if that camera-facing depiction is flawed.”

Netflix’s “Atypical” is offensive, but that’s not its real problem

“On one occasion, when he is about to lose his virginity, he has a freak-out in which he punches a girl as she takes her shirt off. Another time, when trying to seduce his own therapist (ick), he breaks into her house by sneaking into an open window. Elsewhere, he humiliates his girlfriend by proclaiming that he doesn’t love her in front of her entire family.

These aren’t classic signs of autism — they’re violent, creepy, cruel and make the autistic character seem like a monster. When the show then shifts gears to make us feel sorry for Sam, the characterization becomes more offensive. Arguing that those with neurological conditions shouldn’t be held accountable for hurting others is as patronizing as it is socially irresponsible.”

Sarah Luterman has done episode synopses of all eight Atypical Episodes on the website NOS Magazine

Episode 1

“Sam then points out that his therapist’s bra strap is showing, and it’s purple. For some bizarre reason,  Julia doesn’t tell him that this is an inappropriate thing to do. The scene caps off with Julia asking if Sam would like to donate his brain for research purposes. What kind of research? Apparently that isn’t important. She then reassures him that she means she would like his brain after he dies.”

Episode 2

“As Sam narrates how roosters attract hens for mating by putting on a display, we get a flash of Sam’s mother, Elsa, in the bar, seriously considering infidelity. We get more Discovery Channel narration from Sam as his sister waves to the boy she’s interested in. He’s come to watch her track practice. This is dehumanizing. And it’s not just Sam doing the dehumanizing. It’s the show’s writers, making deliberate choices to juxtapose Sam’s discussion of animal mating with human women.”

Episode 3

“In the kitchen, Sam narrates to himself about how humans can’t be perfect because we’re not machines, thereby checking off yet another square for autism stereotype bingo. Some on Twitter have suggested that I create an autism stereotype drinking game for Atypical, but I don’t want to be responsible for any deaths from alcohol poisoning.”

Episode 4

“Elsa gets a text from Nick the Bartender, lies about it, and then accidentally drops her phone, insuring that she misses her daughter’s race. Somehow, this is autism’s fault.”

Episode 5

“A core part of the family dynamic on Atypical is that somehow, Sam’s autism makes everyone around him’s life worse. How, exactly, is unclear. It seems that the mere fact of Sam’s autism negatively impacts everyone around him to a degree where any and all terrible behavior is excused and justified. It’s a completely toxic dynamic. It’s not funny. It’s not even sympathetic. It’s horrifying. I feel sorry for Sam. He’s not the only one who is poorly written and hollow. The people around him are too.”

Episode 6

“After six episodes of a show ostensibly about autism with dozens of characters, an actually autistic  actor, Anthony Jacques, has a bit part as Christopher, another autistic teenage boy. Apparently he originally auditioned to play Sam but didn’t get the part. Robia Rashid, the creator of the show, claims that instead, they hired the “best” actor for the role. The scene Christopher and Sam have together make the artificiality of Keir Gilchrist’s autism act even more obvious than usual. Admittedly, I don’t think that an autistic actor always has to play an autistic character. But in this instance, it would have lent authenticity and subtlety that Atypical completely lacks.”

Episode 7

“Doug takes Sam to Olive Garden to “case the joint.” This means Sam is exploring the space and the menu before his big dinner with Paige’s family. For once, I actually find Sam relatable, although his continued preference to ask people questions while making eye contact instead of just Googling the answers continues to be strange.”

Episode 8

“Treating women like sex objects is not a natural extension of autism. Limiting how often someone is allowed to talk about what they love is abuse, not a real relationship. Autistic women, autistic people of color, queer autistic people and transgender autistic people exist. Autism doesn’t cause families to fall apart. It isn’t even true that families with autistic children have higher divorce rates than the general population. The fact that Netflix could release something like Atypical and run a campaign like #FirstTimeISawMe at the same time shows that Netflix completely fails to understand what disability even is to the people who live it.”

Cultural Critique

Twitter Celebs who are Ableist and don’t even realise it

“The most annoying thing about the responses by Doctor Christian Jessen, a qualified medical professional in general medicine, infectious disease, travel medicine, and sexual health, is that it’s assumed by non-autistics―or allistics―that all medical professionals are experts on mental illnesses, diseases, developmental disorders, neurological conditions, and disability in general. I’m very sorry to inform all of you but you’re wrong. The only experts of a condition, illness, or disability are those who live with it or those who study it extensively and listen to those who have whatever it is they research.”

No, Bad TV Portrayals of Disability are Not Good Learning Opportunities.

“Hey everyone, you should totally watch Atypical  it’s super informative about autism except for the pathologizing of misogyny, the uncritical look at the cult of compliance, the portrayal of autistic people as one dimensional more uncritical takes on using disabled family members as props for personal gain, serious misrepresentation of effective therapy and interventions but yeah, you should totally watch it anyway”

Let me know in the comments if I missed anything.

 

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