We’ve all seen the images. Those pictures of disabled people succeeding. They tend to fall into two general categories.
Disabled people particularly children doing everyday activities. This is often accompanied by quotes like “the only disability in life is a bad attitude”
The other uses images of disabled people doing something noteworthy like reaching a high level of athletic ability or physical fitness, with taglines like “your excuse is invalid” or “What was your excuse again”
The point of these images is to ostensibly put a positive spin on disability. Josephine Fairley argues that inspiration porn must be progress because it takes a topic which has most often been viewed negatively and puts a positive spin on it. The positivity then outweighs the patronizing tone that so often comes along with these images.
The problem is that positivity does not actually equal progress. Particularly for a group that has so often been viewed through a lens of charity. First though, let’s look at the actual messages that are most often put forward.
1. The only disability in life is a bad attitude
Here I will defer to the amazing Stella Young
“The reason that’s bullshit is… No amount of smiling at a flight of stairs has ever made it turn into a ramp. No amount of standing in the middle of a bookshelf and radiating a positive attitude is going to turn all those books to braille”
While it is true that the disabled experience has often been perceived as an existance of unending suffering and that it is important to challenge that stereotype. Framing the disabled experience as being defined only by the attitude of the disabled person lets the nondisabled majority off the hook. How disability is experienced is not just a physical experience but a socially constructed one. This line of thinking allows the oppressor to be comfortable about not challenging the fact the the world is fundamentally not built for disabled people, even where adaptations exist, they are often not available. Braille has existed for over a century and yet materials in Braille are not widely or readily available. Often they must be requested.
We essentially went from a worldview where it was acceptable to segregate and neglect disabled people, which then supported our current inaccessible society to one where segregation is less acceptable but the world remains inaccessible. Making disability about attitude allows people to ignore the existing and new physical and social structures that continue to exclude disabled people. It simply maintains the old exclusionary society but blames it on the oppressed group for not figuring out how to be included.
2. “Your excuse in invalid” or What’s your excuse again?”
These slogans are often with images of disabled people achieving noteworthy things like becoming paralympians or gaining an above average level of fitness. It is certainly true that there need to be success stories for disabled people in the media. They have the dual benefit of showing other disabled people what is possible and breaking down stereotypes. These stories however need to have context. Acheiving athleticism as a disabled person is not as simple as wanting it and then going for it. There are often major barriers so in answer to the second question, there are no excuses but some very good reasons.
Opportunities for disabled people to participate in sports or other athletics (dancing, skating, etc) are not plentiful. We can’t just show up at our local gym and expect to have comprehensive training tailored to our individual needs for two reasons. First, tailor made training is expensive, coincidentally being disabled is often exensive. Add to that, that disabled people are disproportionately likely to live in poverty. Second, assuming the first isn’t an issue, you need a trainer who will work with your specific needs and limitations. These people are hard to find. A disabled person is more likely to be refused access to a training facility outright even if they only want to use it recreationally. Classes designed specifically for disabled people are often in groups so getting individual attention is hard. Also these courses are often thinly veiled physio therapy sessions that are more concerned with getting us moving than getting us to succeed at whatever the class is. If we manage to get in the classes for nondisabled people we are often left to flounder with no individual support or even become victims of abuse if we fail to participate at the same level.
So success stories are important but so to is the context. How did they pay for training? Where did they find a coach? What barriers did they face and how were they dealt with?
Yes I know, inspiration porn is more for the nondisabled consumer than the disabled one so many of the barriers don’t exist for the intended audience but the lack of context raises expectations for disabled people who don’t live up to that standard. It creates a value based binary of those who succeed and those who don’t without looking at why some people can’t succeed. The message for those who don’t is “You didn’t try hard enough” not “let’s make it easier for you to succeed”.
Coming back to Fairley’s argument that anything positive is progress. This argument is pretty weak because good intentions don’t equal good outcomes. The battle for human rights cannot be boiled down to “It’s the thought that counts”. In the fight for equality it is not the thought that count, it’s the results that count. Positive feelings that reinforce old oppressions are nothing but a new face for an old wrong.
Disability rights activists are not the only marginalized group to take aim at this lie. We currently live in a society where rights are discussed more freely and allies from outside the marginalized group are lining up to help. Unfortunately sometimes their good intentions do more harm then good. This has led to a lot of discussion of how to be a good ally and addressing the common problems that voices of privilege brings to discussions of oppression.
So this is not a new problem or one that is unique to disability rights activism but it is one that is slightly more complicated in the realm of disability. We don’t just have allies, we are also stuck with advocates. People who don’t even pretend to stand with us but instead position themselves to speak for us. This is because of the long history of disability charities. It has long been and continues to be considered acceptable for charities to dictate how disability should be perceived and dealt with. Often without the input of disabled people either in the design or implementation of these organizations (Autism Speaks, Neil Squire Society to name a couple). We are still very deeply contained in a social mentality that we need to be saved by the well meaning who then get tax rebates for donations. Charities always frame what they do as positive and helpful even when the people who are the intended recipients disagree. Consider the newly cancelled MDA telethon that provoked protests for years but only began to lose sway after Jerry Lewis stopped hosting the event. Former MDA poster child Emily Wolinsky even helped found a competing organization that addressed issues ignored by MDA.
The false positivity of inspiration porn is just another tool to keep disabled people in a place that is controlled and defined by nondisabled people. It does nothing but reinforce old stereotypes of laziness and robs disabled people of accurate representation in the media by coopting our stories for the consumption of others.